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Peer support groups

Some people find comfort in sharing their experiences with other patients or family members. By sharing experiences or feelings, one can help each other. In the field of metabolic diseases, there are several patient associations or foundations that make it possible to get in touch with other patients or family members. In addition, these associations often organize patient meetings and fundraising events, and you can find additional information about the disorder on their websites. Below is an overview of patient associations and foundations in the field of Porphyria.