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Clinical Characteristics and Outcomes of Acute Intermittent Porphyria: Insights From the European Porphyria Registry.

Baravelli CM, Sandberg S, Hammersland MH, Harper P, Badminton MN, Aguilera P, Cassiman D, Deybach JC, Di Pierro E, Graziadei G, Langendonk JG, Marcacci M, Sardh E, Schmitt C, To-Figueras J, Ventura P, Aarsand AK

Liver international : official journal of the International Association for the Study of the Liver, 2026 May

Abstract

Acute intermittent porphyria (AIP) is a rare disorder with diverse clinical presentations, ranging from latent at-risk individuals to recurrent acute attacks with severe complications. Differences between clinical states and risk factors for severe outcomes remain incompletely defined.

doi: 10.1111/liv.70615